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Subject: Press Release from HPNA and the American Pain Foundation - February20, 2006



For Immediate Release

CONTACT: Rebecca Novak Tibbitt Judy Lentz, CEO of HPNA

(704) 341-1544 (412) 787-9301

rnovaktibbitt@bellsouth.net judyl@hpna.org

100 ORGANIZATIONS SIGN CONSENSUS IN SUPPORT OF H.R. 1020:

THE NATIONAL PAIN CARE POLICY ACT OF 2005

Bill passage critical for 75 million Americans suffering from pain

BALTIMORE, MD (February 13, 2006) ??“ The American Pain Foundation today announced that 100 organizations have endorsed a consensus statement in support of House Resolution 1020: The National Pain Care Policy Act of 2005 (H.R. 1020). The statement and a complete list of signers are attached.

Strong support has been received from the patient and professional pain management community, as well as related organizations that work with painful conditions such as cancer, musculoskeletal, neuropathic, headache/migraine and burn pain. This united voice for change reflects that it is no longer tolerable that 75 million American suffer pain and the majority do not receive appropriate care.

???This wide-ranging support is a clear indication of how pain cuts across race, age, gender and numerous medical conditions,??? said Will Rowe, Executive Director, American Pain Foundation. ???The pain community and other stakeholders are demonstrating to our elected officials their strength in numbers and the opportunity that they have to make a difference in the lives of millions of their constituents.???

H.R. 1020, which was reintroduced by Congressman Michael Rogers (MI-8) in 2005, is designed to raise public awareness, improve pain education for healthcare providers, improve access to pain management services, and to increase research on pain conditions. While pain is the leading complaint of people visiting a healthcare professional,[1] medical schools require limited hours of curriculum to pain, if at all. Additionally, the National Institutes of Health designate less than one percent of their annual budget to research on pain.[2]

???Creating the National Pain Care Policy Act is about achieving victory for millions of American living with pain and the negative impact it has on their lives, the lives of their families and on the nation's health and well-being. It's about giving people with daily, hourly pain real hope for the future,??? said Rogers, a member of the U.S. House Subcommittee on Health.

To date, 33 co-sponsors have endorsed the bill, however, the organizations that are in consensus are working to secure additional support during this congressional session. The text of the H.R. 1020 bill is available at http://thomas.loc.gov.

Pain in America: A Public Health Crisis

An estimated 75 million Americans suffer serious pain annually: 50 million of those endure serious chronic pain (pain lasting 6 months or more), and another 25 million experience acute pain (i.e. injuries, accidents, surgeries).[3] Headache, lower back pain, arthritis and other joint pain, and peripheral neuropathy are the most common forms of chronic pain.[4] Despite the incidence of pain, research has shown that only 1 in 4 of those with pain received adequate treatment.[5]

The National Institutes of Health estimates that pain costs more than $100 billion per year in medical expenses, lost wages and lost productivity.
[6] Research has also shown that those with chronic pain experience difficulties on the job and their personal relationships suffer due to their condition, a toll that is more difficult to quantify in terms of dollars.[7]

 

About the American Pain Foundation

Founded in 1997, the American Pain Foundation is an independent nonprofit 501(c)3 organization serving people with pain through information, advocacy, and support. Our mission is to improve the quality of life of people with pain by raising public awareness, providing practical information, promoting research, and advocating to remove barriers and increase access to effective pain management. For more information, visit www.painfoundation.org.

 

Consensus Statement in support of H.R. 1020, the National Pain Care Policy Act of 2005

Pain touches every member of our society at some point throughout their life, with an estimated 75 million Americans suffering from acute or chronic pain every year. Left untreated, chronic pain has the potential to rob quality of life from those who suffer ??“ affecting their physical, psychological, social, and spiritual sense of well-being. While recent strides have been made in the research and management of pain, much more can and must be done. Educating healthcare professionals and the general public, improving access to care, particularly among minority and underserved populations, and increasing research into the causes of chronic pain and corresponding therapies have the potential to alleviate the suffering of millions.

As members and representatives of the pain care community, we, the undersigned, support H.R. 1020, the National Pain Care Policy Act of 2005. Specifically, we support:

-  The development and execution of a White House Conference on Pain Care, designed to:

  • increase the awareness of pain as a significant public health problem;
  • assess the adequacy of diagnosis and treatment of pain;
  • identify barriers to appropriate pain care; and,
  • establish an agenda for the Decade of Pain Control and Research, stimulating public and private sector efforts to improve the state of pain care research, education, and clinical care by the year 2010.

 

-  The promotion of clinical and basic scientific research into the causes and effective treatments for pain through the National Institutes of Health.

 

-  Requirements for the Agency for Healthcare Research and Quality (???AHRQ???) to collect and disseminate protocols and evidence-based practices regarding pain and palliative care to clinicians and the general public, as well as fund education and training programs for health care professionals in pain and palliative care.

 

-  The development and implementation of a national public awareness campaign on pain management designed to educate employers, insurers, consumers, patients, families and other caregivers about:

  • the significance of pain as a national public health problem;
  • the risks to patients if pain is not properly treated;
  • the availability of treatment options for different types of pain;
  • the patient??™s right to have pain assessed and treated across health care settings; and,
  • where patients and other consumers can go for help in dealing with pain.

-  Requirements for the Secretary of Defense to develop and implement a pain care initiative in all military health care facilities to ensure that all personnel receiving treatment in military health care facilities are assessed for pain at the time of admission or initial treatment, and that they receive appropriate pain care.

-  Requirements for managed health care plans that offer Medicare+Choice plans to seniors to offer appropriate care for the treatment of patients in pain, including specialty and tertiary care for patients with intractable pain. Additionally, we support requirements for similar protections for military personnel and dependents enrolled in Tricare plans.

-  Requirements for CMS to submit to Congress an annual report on Medicare expenditures for pain and palliative care.

- Requirements for the Secretary of the DVA to develop and implement a pain care initiative in all VA health care facilities to ensure that all veterans receiving treatment in those facilities are assessed for pain at the time of admission or initial treatment, and that they receive appropriate pain care.

Signed,

  1. Alameda County Medical Center
  2. Alliance for Prostate Cancer Prevention
  3. American Academy of Hospice and Palliative Medicine
  4. American Academy of Orofacial Pain
  5. American Academy of Pain Management
  6. American Academy of Pain Medicine
  7. American Alliance of Cancer Pain Initiatives
  8. American Chronic Pain Association
  9. American College of Rheumatology
  10. American Headache Society
  11. American Hospice Foundation
  12. American Occupational Therapy Association
  13. American Pain Foundation
  14. American Pain Society
  15. American Pharmacists Association
  16. American Physical Therapy Association
  17. American RSD Hope Organization
  18. American Sleep Apnea Association
  19. American Society for Pain Management Nursing
  20. American Society of Anesthesiologists
  21. American Society of Health-System Pharmacists
  22. Amputee Coalition of America
  23. Arizona Pain Initiative
  24. Arthritis Foundation
  25. Association of Oncology Social Work
  26. Association of Rheumatology Health Professionals
  27. BIOCOM
  28. Bombobeach.com Adhesions Support Group
  29. California Prostate Cancer Coalition
  30. Capital Hospice
  31. Cephalon
  32. CFIDS Association of America
  33. Charcot-Marie-Tooth Association
  34. Chronic Pain Buddies
  35. Circle Of Friends With Arachnoiditis
  36. Citizen Advocacy Center
  37. Dia de la Mujer Latina, Inc.
  38. Ehlers Danlos National Foundation
  39. Ehlers-Danlos Syndrome Network CARESOrganization
  40. Endometriosis Association
  41. Endometriosis Research Center
  42. eNURSING llc
  43. Federation of State Medical Boards of the United States, Inc.
  44. Florida Pain Initiative
  45. For Grace
  46. Hereditary Neuropathy Foundation
  47. Hospice and Palliative Nurses Association
  48. Hospice Foundation of America
  49. Intercultural Cancer Council Caucus
  50. Intercultural Center for Health and Wellness, Inc.

  1. Interstitial Cystitis Association
  2. Intractable Pain Patients United
  3. Johnson & Johnson
  4. Kansas Pain Initiative
  5. Ligand Pharmaceuticals, Inc.
  6. Louisiana Pain Initiative
  7. MAGNUM, The National Migraine Association
  8. Maine Coalition to Fight Prostate Cancer
  9. Maryland Pain Initiative
  10. Massachusetts Pain Initiative
  11. Master of Science in Pain Research, Education and Policy at Tufts University School of Medicine
  12. Medtronic, Inc.
  13. Missouri Pain Initiative
  14. Multiple Sclerosis Foundation
  15. National Association of Social Workers
  16. National Chronic Pain Society
  17. National Eosinophilia-Myalgia Syndrome Network, Inc.
  18. National Fibromyalgia Association
  19. National Foundation for the Treatment of Pain
  20. National Hospice & Palliative Care Organization
  21. National Organization for Rare Disorders
  22. National Pain Foundation
  23. National Resource Center on Diversity
  24. National Vulvodynia Association
  25. Native American Cancer Research
  26. Nevada Pain Initiative
  27. North CarolinaPain Initiative
  28. Ohio Pain Initiative
  29. Oregon Pain Management Commission
  30. P.A.N.D.O.R.A., Inc - Patient Alliance for Neuroendocrineimmune Disorders Organization for Research & Advocacy
  31. Pain Care Coalition
  32. Pain Policy Studies Group University of Wisconsin
  33. PAWS for Pain Patients
  34. Pennsylvania Cancer Pain Initiative
  35. Pennsylvania Prostate Cancer Coalition
  36. Pioneer Development Resources, Inc.
  37. Purdue Pharma LP
  38. Reflex Sympathetic Dystrophy Syndrome Association of America
  39. Scleroderma Foundation
  40. Sickle Cell Disease Association of America
  41. Southern California Cancer Pain Initiative
  42. TMJ Association
  43. Trigeminal Neuralgia Association
  44. University of Florida Comprehensive Center for Pain Research
  45. Virginia Cancer Pain Initiative
  46. Visiting Nurse Associations of America
  47. Washington Alaska Pain Initiative
  48. Wisconsin Pain Initiative
  49. Women With Pain Coalition
  50. World Burn Foundation International

Updated 2.8.06



[1] National Institute of Arthritis and Musculoskeletal and Skin Diseases NIH Guide: ???New Directions in Pain Research.??? NIH Web site: http://www.niams.nih.gov/rtac/funding/grants/pa/pa98-102.htm.

[2] Journal of Pain. May 2005, Volume 6, Number 5, pp 277-293.

[3] National Pain Survey, conducted for Ortho-McNeil Pharmaceutical, 1999.

[4] ???Pain in America,??? study sponsored by Mayday Fund, 1998.

[5] ???Chronic Pain in America,??? survey conducted for American Pain Society, American Academy of Pain Medicine and Janssen Pharmaceutica, 1999.

[6] National Institutes of Health, "The NIH guide: New directions in pain research I," Washington, DC: GPO, 1998.

[7] Americans Living With Pain Survey, conducted for the American Chronic Pain Association, 2005.









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